Generated by All in One SEO v4.9.7.2, this is an llms.txt file, used by LLMs to index the site.

# Udruženje za bolesti motoneurona Srbije

## Sitemaps

- [XML Sitemap](https://als.dgt.rs/sitemap.xml): Contains all public & indexable URLs for this website.

## Posts

- [Aktuelna terapija i novine u lečenju pacijenata sa ALS - Prof.dr Zorica Stević](https://als.dgt.rs/2026/06/19/aktuelna-terapija-i-novine-u-lecenju-pacijenata-sa-als-prof-dr-zorica-stevic/)
- [Prof.dr Zorica Stevic Novine u terapiji ALS 2024](https://als.dgt.rs/2025/01/09/prof-dr-zorica-stevic-novine-u-terapiji-als-2024/)
- [TQS-168 Found to Reduce Inflammation, Extend Survival in Mice](https://als.dgt.rs/2021/11/19/tqs-168-found-to-reduce-inflammation-extend-survival-in-mice/) - TQS-168, an investigational therapy being developed by Tranquis Therapeutics, reduced inflammation in mouse and human models of amyotrophic lateral sclerosis (ALS), and prolonged survival in the mice, according to a preclinical study. Based on these findings, Tranquis is moving the therapy into Phase 1 clinical studies. “We believe TQS-168 represents a new class of treatment for ALS
- [Amylyx Files for European Approval of AMX0035 in Treating ALS](https://als.dgt.rs/2022/01/11/amylyx-files-for-european-approval-of-amx0035-in-treating-als/) - Amylyx Pharmaceuticals has filed an application with the European Medicines Agency seeking the approval of its lead candidate AMX0035 as a treatment of amyotrophic lateral sclerosis (ALS), the company announced in a press release. The marketing authorization request follows similar submissions to Health Canada and the U.S. Food and Drug Administration. U.S. regulators recently placed the
- [Humanitarno-memorijalni turnir “LAZAR BJELAJAC”](https://als.dgt.rs/2026/05/10/humanitarno-memorijalni-turnir-lazar-bjelajac/) - Dugogodišnji Lazarevi drugari glavni organizatori humanitarno-memorijalnog turinira “Lazar Bjelajac”Osnovna ideja je bila: „...da na dostojanstven i društveno angažovan način održavamo sećanje na našeg prijatelja... Tokom 2025. godine dugogodišnji Lazarevi dugari organizovali su organizovali su plemenitu akciju 22. juna, u vidu humanitarno-memorijalnog basketaškog (3×3) turnira pod nazivom “LAZAR BJELAJAC”. Turnir je bio posvećen jednom predivnom mladom
- [Praktične  informacije o  zdravstvenim olakšicama](https://als.dgt.rs/2025/06/04/prakticne-informacije-o-zdravstvenim-olaksicama/) - 1. Lek Rilutek se dobija besplatno za korisnike obaveznog zdravstvenog osiguranja uz prethodno pozitivno Konzilijarno mišljenje tri neurologa sa Klinike za Neurologiju Kliničkog Centra Srbije. U toku je razmatranje izmene, da pozitvno konzilijrno mišljenje za rilutek, dobijete i na Klinikama za Neurologiju KC Vojvodine u Novom Sadu, KC u Nišu i KC u Kragujevcu. 2. Vitamini, Coenzym Q
- [Nevidljivi heroji Srbije](https://als.dgt.rs/2022/04/17/nevidljivi-heroji-srbije/) - O filmu “Nevidljivi heroji Srbije” Film „Nevidljivi heroji Srbije“, je priča u želji da javnost upozna sa neverovatno hrabrim ljudima, obolelim od amiotrofične lateralne skleroze, koji su vezani za respiratore, zarobljenog tela, jer ne pokreću ni ruke ni noge, ili su to u mogućnosti da čine minimalno, zarobljenog glasa, a blistavog uma. Želeli smo da prikažemo
- [A Sign of the Times — Could They Be a-Changin’?](https://als.dgt.rs/2021/11/19/a-sign-of-the-times-could-they-be-a-changin/) - “All the Bush League battersAre left to die on the diamondIn the stands the home crowd scattersFor the turnstiles.” Twice in my post-ALS life, Neil Young’s song “For the Turnstiles” has struck me smack dab in the center of my forehead. As the dust finally settled following my ALS diagnosis, the reality that the disease had begun
- [Phase 2 Safety Trial of AT-1501 Nears Full Enrollment of Patients](https://als.dgt.rs/2021/11/19/phase-2-safety-trial-of-at-1501-nears-full-enrollment-of-patients/) - A Phase 2 study of the investigational antibody AT-1501 in treating amyotrophic lateral sclerosis (ALS) has completed patient enrollment in three of its four dosing groups, and is likely to be fully enrolled by year’s end, its developer, Eledon Pharmaceuticals, announced. A total of 54 ALS patients diagnosed in the previous two years are expected to
- [CNM-Au8 Fails at Key RESCUE-ALS Trial Goals, But Trends ‘Encouraging’](https://als.dgt.rs/2021/11/19/cnm-au8-fails-at-key-rescue-als-trial-goals-but-trends-encouraging/) - CNM-Au8, an investigational disease-modifying therapy for people with early amyotrophic lateral sclerosis (ALS), failed to prevent motor neurons loss and lung function decline relative to a placebo, according to top-line data from the RESCUE-ALS Phase 2 clinical trial. The trial, in other words, did not meet its primary and a key secondary goal after 36 weeks
- [How Being ‘Stuck in the Middle’ Turned Into a Blessing in Disguise](https://als.dgt.rs/2021/11/19/how-being-stuck-in-the-middle-turned-into-a-blessing-in-disguise/) - “Well I don’t know why I came here tonight,I’ve got the feeling that something ain’t right.I’m so scared in case I fall off my chair,And I’m wondering how I’ll get down the stairs.Clowns to the left of me!Jokers to the right!Here I am stuck in the middle with you.” The saga of the British band Stealers
- [TP73 Gene Mutations May Be Risk Factor for Sporadic ALS](https://als.dgt.rs/2021/08/15/tp73-gene-mutations-may-be-risk-factor-for-sporadic-als/) - Rare mutations in the TP73 gene, which is involved in the regulation of a cell’s life cycle, may put a person at greater risk of amyotrophic lateral sclerosis (ALS), according to a genetic analysis of nearly 2,900 sporadic ALS patients. Such mutations were found to affect the maturation and survival of motor neurons in zebrafish, in
- [Frequent, Intense Exercise is a Risk Factor for ALS – – But is it?](https://als.dgt.rs/2021/08/15/frequent-intense-exercise-is-a-risk-factor-for-als-but-is-it/) - Get ready for a flurry of viral articles and posts on social media bashing exercise and ALS. Although we’ve had over 10 years of published research showing the benefits of exercise once you’ve been diagnosed with ALS. New research has been published that delves into the controversy surrounding theories that exercise (or sports) increases the
- [Risk of Diseases Like ALS Almost 4 Times Higher in Professional Soccer](https://als.dgt.rs/2021/08/15/risk-of-diseases-like-als-almost-4-times-higher-in-professional-soccer/) - Men who played professional soccer were nearly four times more likely to develop a neurodegenerative disorder, including a motor neuron disease such as amyotrophic lateral sclerosis (ALS), than men of similar age in the general population, a long-term analysis found. Risk was greatest in players with longer careers and among those who played in the outfield,
- [Intervjui sa porodicama koje su učestvovale u filmu Nevidljivi heroji Srbije](https://als.dgt.rs/2021/08/09/intervjui-sa-porodicama-koje-su-ucestvovale-u-filmu-nevidljivi-heroji-srbije/) - Autorke filma Nevidljivi heroji Srbije Dr Zorica Stević, profesorka Medicinskog fakulteta, rukovodilac Centra za polineuropatije na Klinici za neurologiju Kliničkog centra Srbije i njena ćerka Irina Tomić snimile su film o njima. Kako se bore sa bolešću koja je zadesila njihove najmilije, govorile su supruga Radoslava Međedovića, sestra Žarka Đurića i ćerka Vladana Trivića, koji
- [Gentle movements to improve body-mind awareness](https://als.dgt.rs/2021/08/09/gentle-movements-to-improve-body-mind-awareness/) - Not all exercise needs to be huff-and-puff or throw-and-go. Sometimes moving slowly while paying attention to the details of each movement is beneficial too. Especially for increasing our body-mind awareness. Which for those of us living with ALS, is extremely important. Some days my body just feels disconnected; my arms and legs receiving garbled messages from
- [Pre-fALS](https://als.dgt.rs/2021/08/09/pre-fals/) - For more than a decade, investigators at the University of Miami Miller School of Medicine have been studying the earliest signs of amyotrophic lateral sclerosis (ALS). Now, armed with biomarkers and findings from their Pre-Symptomatic Familial ALS (Pre-fALS) study, these researchers are collaborating with Biogen to design a clinical trial that aims to evaluate whether
- [When Second Opinions Get Social](https://als.dgt.rs/2021/08/09/when-second-opinions-get-social/) - Lately, I’ve noticed a strange trend happening in several online ALS communities I belong to. I’ve seen an increase in posts from people who haven’t yet been diagnosed with ALS asking members of the group to essentially offer medical opinions. A typical post begins with a list of physical symptoms, followed by a statement that their
- [Pozivnica za promociju filma Nevidljivi heroji Srbije](https://als.dgt.rs/2021/06/19/pozivnica-za-promociju-filma-nevidljivi-heroji-srbije/)
- [The Mystery Behind Keeping the Home Fires Burning](https://als.dgt.rs/2021/06/09/the-mystery-behind-keeping-the-home-fires-burning/) - “You shoot me glances and they’re so hard to read,I misconstrue what you mean. …Are you just playing, making passes?Well, my heart could use some glasses. …Do I read you correctly, I need you directly,Help me with this part,Do I love you? Do I hate you?I got a dyslexic heart.” Nearly every couple I know well
- [International Alliance of ALS/MND Associations](https://als.dgt.rs/2021/06/09/international-alliance-of-als-mnd-associations/) - PURPOSE: The Alliance is a global network of ALS/MND associations informed by PALS/CALS, that builds capability for its members and connects to external stakeholders. VISION: A World Free of ALS/MND VALUE PROPOSITION: We help members thrive by adding value to existing and future associations through curation and creation of information and by acting as a global gateway through
- [Biogen Agrees to Tofersen Access in July for Rapidly Advancing ALS](https://als.dgt.rs/2021/06/09/biogen-agrees-to-tofersen-access-in-july-for-rapidly-advancing-als/) - People with very rapidly progressing familial amyotrophic lateral sclerosis (ALS) caused by mutations in the SOD1 gene may gain early access to Biogen’s experimental therapy tofersen by mid-July, the company announced. This marks the first part of Biogen’s planned access program for tofersen, and will begin after patients initially assigned to a placebo in VALOR, the Phase 3 portion of a pivotal clinical
- [#AANAM – Progression May Be Evident in About 1.5 Years of Radicava Start](https://als.dgt.rs/2021/06/09/aanam-progression-may-be-evident-in-about-1-5-years-of-radicava-start/) - Editor’s note: The ALS News Today team is providing in-depth coverage of the 2021 Virtual AAN Annual Meeting, April 17–22. Go here to read the latest stories from the conference. Amyotrophic lateral sclerosis (ALS) patients require walking aids, ventilation support, and/or speech generation devices about 1.5 years after starting treatment with Radicava (edaravone), according to data from U.S. insurance health claims. These real-world findings may
- [Come Smell the Bacon](https://als.dgt.rs/2021/06/09/come-smell-the-bacon/) - “Everybody’s talkin’ at me,Can’t hear a word they’re sayin’,Only the echoes of my mind.”– Fred Neil ALS has rendered me a minimalist creature of habit. My weekday routine includes the intersection of paranoid caution, practiced routine, and hunger — known to most as lunch. During this necessary refueling stage, I often take in various network news feeds.
- [1.MDA Golf Events to Support Neuromuscular Research, Patient Care](https://als.dgt.rs/2021/06/09/1-mda-golf-events-to-support-neuromuscular-research-patient-care/) - Registration is now open for fundraising events at four championship golf courses, whose fees will be used to fund research, care, and advocacy for neuromuscular disorders such as amyotrophic lateral sclerosis (ALS) and muscular dystrophy.According to the Muscular Dystrophy Association (MDA), which is promoting the events, money raised will help to provide equal access for
- [#MDA2021 – WVE-004 Treats Causes of ALS Due to C9orf72 Mutations in Early Study](https://als.dgt.rs/2021/04/12/mda2021-wve-004-treats-causes-of-als-due-to-c9orf72-mutations-in-early-study/) - Editor’s note: The ALS News Today team is providing in-depth coverage of the 2021 MDA Virtual Clinical and Scientific Conference, March 15–18. Go here to read the latest stories from the conference. WVE-004, an investigational treatment for people with amyotrophic lateral sclerosis (ALS) and frontotemporal dementia (FTD) who carry C9orf72 gene mutations, lowered the production of
- [ALS News Today Forums](https://als.dgt.rs/2020/11/09/als-news-today-forums/)
- [PharmaTher Plans to Develop Ketamine as Potential ALS Treatment](https://als.dgt.rs/2021/04/12/pharmather-plans-to-develop-ketamine-as-potential-als-treatment/) - Under an agreement with the University of Kansas, PharmaTher has gained exclusive worldwide rights to develop and possibly commercialize ketamine as a therapy for amyotrophic lateral sclerosis (ALS). “We are pleased to have added the [ALS] program to our already impressive development pipeline that focuses on novel uses, formulations and delivery of ketamine in the treatment
- [A Gut Feeling About ALS](https://als.dgt.rs/2021/01/29/a-gut-feeling-about-als/) - The Mind Body Connection Amyotrophic lateral sclerosis (ALS) is a progressive neurological disease that destroys the neurons that control voluntary muscle movements. The first symptoms of ALS are typically weakness in the limbs and muscle twitches, but the illness eventually disrupts patients’ abilities to move, speak, and even breathe. Treatments exist to extend patient quality
- [Tube Feeding](https://als.dgt.rs/2021/02/08/tube-feeding/) - Amyotrophic lateral sclerosis (ALS) is a progressive neurodegenerative disorder associated with the death of motor neurons. These are nerve cells that control the voluntary muscles, which are essential for movement. As the condition progresses, the muscles weaken and waste away, resulting in a loss of muscle control. Although ALS can progress differently in each person, many
- [MND study provides exciting new focus for potential drug treatments](https://als.dgt.rs/2021/02/08/mnd-study-provides-exciting-new-focus-for-potential-drug-treatments/) - January 2021: Motor neurone disease treatments that boost energy in nerve cells could be developed thanks to new research. Researchers at the Euan MacDonald Centre for MND Research have recently published the findings of a research study that has provided a new focus for potential drug treatments for MND. The research team created a model of
- [A prospective harmonized multicenter DTI study of cerebral white matter degeneration in ALS](https://als.dgt.rs/2021/02/08/a-prospective-harmonized-multicenter-dti-study-of-cerebral-white-matter-degeneration-in-als/) - Abstract Objective To evaluate progressive white matter (WM) degeneration in amyotrophic lateral sclerosis (ALS). Methods Sixty-six patients with ALS and 43 healthy controls were enrolled in a prospective, longitudinal, multicenter study in the Canadian ALS Neuroimaging Consortium (CALSNIC). Participants underwent a harmonized neuroimaging protocol across 4 centers that included diffusion tensor imaging (DTI) for assessment of
- [Obaveštenje: Vakcinacija protiv virusa COVID 19](https://als.dgt.rs/2021/01/31/obavestenje-vakcinacija-protiv-virusa-covid-19/) - Poštovani pacijenti sa bolešću motoneurona tj. amiotrofičnom lateralnom sklerozom,Zbog velikog broja telefonskih poziva i poruka još jednom želim da Vas zamolim i ohrabrim da je zbog prirode Vaše bolesti neophodno da se vakcinišete protiv Covid 19.Amiotrofična lateralna skleroza nije autoimuna bolest već neurodegenerativna i svakako da se ne očekuje, ni teorijski, neki problem koji može
- [All About: Neck, Hand and, Foot/Ankle Braces](https://als.dgt.rs/2021/01/29/all-about-neck-hand-and-foot-ankle-braces/) - Neck Braces for ALS: https://www.youralsguide.com/neck-braces-for-als.html Wrist Braces and Hand Splints for ALS: https://www.youralsguide.com/ankle-foot-braces-for-als.html Ankle Foot Braces (AFOs) for ALS: https://www.youralsguide.com/wrist-braces-and-hand-splints-for-als.html
- [Mindfulness May Improve Depression, Quality of Life in ALS Patients](https://als.dgt.rs/2021/01/29/mindfulness-may-improve-depression-quality-of-life-in-als-patients/) - Mindfulness-based programs may help improve anxiety and depression in patients with amyotrophic lateral sclerosis (ALS), according to results of a study published recently in the European Journal of Neurology. The study is titled “Meditation training for people with amyotrophic lateral sclerosis: a randomized clinical trial.” The journal also published an editorial written by Jaushin Lou,
- [Позив особама са посебним потребама за предлоге унапређења њиховог кретања и функционисања у граду Београду](https://als.dgt.rs/2021/01/29/позив-особама-са-посебним-потребама-з/) - ГРАД БЕОГРАД Служба главног урбанисте града Београда упућује Позив особама са посебним потребама за предлоге унапређења њиховог кретања и функционисања у граду Београду Позив свим особама са посебним потребама, као и онима који се баве питањима унапређења њихове свакодневице да пошаљу своје сугестије, предлоге, идеје, као и позиције у Граду које сматрају критичним, како би
- [First Patient Enrolled in Pridopidine Arm of the HEALEY ALS Platform Trial](https://als.dgt.rs/2021/01/16/first-patient-enrolled-in-pridopidine-arm-of-the-healey-als-platform-trial/) - A pivotal clinical trial evaluating pridopidine for the treatment of amyotrophic lateral sclerosis (ALS) has enrolled its first participant, Prilenia Therapeutics, the medicine’s maker, announced. The Phase 2/3 study, dubbed HEALEY ALS Platform – Regimen D Pridopidine (NCT04615923), will compare the safety and effectiveness of pridopidine to placebo in an estimated 160 ALS patients, ages 18
- [PrimeC Earns Orphan Drug Designation in Europe](https://als.dgt.rs/2021/01/16/primec-earns-orphan-drug-designation-in-europe/) - The European Medicines Agency has granted orphan drug designation to PrimeC, an investigational combination therapy for amyotrophic lateral sclerosis (ALS). PrimeC, developed by NeuroSense Therapeutics, also has received orphan drug designation in the United States. The designation, both in the U.S. and Europe, encourages drugmakers to develop therapies for rare and serious diseases by granting them
- [Smernice o vakcinaciji za osobe obolele od retkih bolesti](https://als.dgt.rs/2021/01/16/smernice-o-vakcinaciji-za-osobe-obolele-od-retkih-bolesti/) - Dragi članovi, Kako je trenutno aktuelno pitanje vakcinacije za sve građane naše države, pogotovo za smernice o vakcinaciji za osobe obolele od retkih bolesti, ovim putem smo želeli da vas informišemo o nekoliko inostranih online događaja koji se bave pitanjem vakcine i koji vam, nadamo se mogu dati odgovore na neka pitanja koja imate. 1. Evropski forum
- [Važne informacije vezane za Corona virus](https://als.dgt.rs/2020/12/31/vazne-informacije-vezane-za-corona-virus/) - Dragi naši prijatelji, Na kraju ove izuzetno teške godine za sve nas, zbog pandemije Corona virusom, molimo Vas da i dalje istrajete, ne samo u borbi sa svojom bolešću, nego i sa Covidom ! U toku ove godine izgubili smo značajno više ALS pacijenata, ne samo zbog toka bolesti, nemogućnosti da dođu do svojih lekara, već i
- [SREĆNI PRAZNICI! 2021.](https://als.dgt.rs/2020/12/22/srecni-praznici/) - Poštovani prijatelji,Čestitamo Vama i Vašim porodicama Novu 2021.godinu! Želimo Vam da Božić i Novu godinu provedete u krugu svojih porodica okruženi ljubavlju srećom i radošću.
- [Dragi naši prijatelji - čuvajte se korona virusa!](https://als.dgt.rs/2020/12/22/dragi-nasi-prijatelji/) - Dragi naši prijatelji, Obraćam Vam se sa molbom da istrajete ne samo u borbi sa svojom bolešću nego i sa Covidom! Na samom početku smo svi mislili da će ovo proći ali pogrešili smo. Ovaj neprijatelj je kao i ALS potpuno nepredvidljiv. Morate istrajati u svakodnevnoj zaštiti, da ne dobijete COVID. Videćemo šta će biti što se tiče
- [DONACIJA: MAŠINE ZA NEINVAZIVNU VENTILACIJU (NIV) Vivo 3 i Vivo 55](https://als.dgt.rs/2020/12/22/niv-masine-vivo-3-i-vivo-55/) - Udruženje za bolesti motoneurona Srbije je od MK Group dobilo i donaciju u oktobru 2020. Godine, od 10 000 evra, koju je iskoristila za nabavku dve nove NIV mašine Vivo 3 i Vivo 55 koje je Udruženje doniralo Kliničkom Centru Srbije za potrebe ALS pacijenata koji su ugroženi što se tiče disanja i kojima je
- [Dosing Begins in Phase 2 Study of Pegcetacoplan in ALS Patients](https://als.dgt.rs/2020/12/07/dosing-begins-in-phase-2-study-of-pegcetacoplan-in-als-patients/) - A first patient has been dosed in the Phase 2 trial investigating pegcetacoplan (APL-2), Apellis Pharmaceuticals‘ candidate therapy for amyotrophic lateral sclerosis (ALS), the company and the Swedish Orphan Biovitrum (Sobi) announced.The potentially pivotal trial, called MERIDIAN (NCT04579666), is currently enrolling patients at the Austin Neuromuscular Center. It aims to recruit 228 adults with sporadic ALS and symptom onset within the last 18 months at the Texas site, with
- [How I Learned to Love My Rollator](https://als.dgt.rs/2020/12/22/how-i-learned-to-love-my-rollator/) - In 2010, a few short months after my ALS diagnosis, I found myself having to rely full time on a rollator. I’ll be the first to admit I wasn’t happy at all. But now, nine years later, it’s become my ever-present silent buddy, and I can’t imagine my life without it! Are you struggling to accept
- [Giving Thanks With 2020 Vision](https://als.dgt.rs/2020/12/07/giving-thanks-with-2020-vision/) - “I am a rock,I am an island,And a rock feels no pain.”In 2020, there have been none of Paul Simon’s “rocks” to be found in the social circles that I inhabit. Everyone that I know has endured suffering of one kind or another. Many folks’ pain is derived from multiple sources.Tomorrow is Thanksgiving here in the
- [BREN-02, Potential Restorative ALS Therapy, Named Orphan Drug by FDA](https://als.dgt.rs/2020/12/07/bren-02-potential-restorative-als-therapy-named-orphan-drug-by-fda/) - BREN-02, a lab-made form of the human protein engrailed 1 (EN1), has been designated an orphan drug by the U.S. Food and Drug Administration (FDA) as a potential treatment of amyotrophic lateral sclerosis (ALS), its developer, BrainEver, announced in a press release.Orphan drug status is granted to stimulate the development of therapies aiming to prevent, diagnose, or treat disorders affecting fewer than 200,000 people in the
- [Ledeni izazov: Čovek koji je zaslužan za Ice Bucket Challenge preminuo u 37. godini](https://als.dgt.rs/2020/12/01/ledeni-izazov-covek-koji-je-zasluzan-za-ice-bucket-challenge-preminuo-u-37-godini/)
- [MAŠINE ZA NEINVAZIVNU VENTILACIJU(NIV) - BiPAP A 40](https://als.dgt.rs/2020/05/26/bipap-a-40/) - www.healthcare.philips.com/main/homehealth/respiratorycare/bipapa40/www.philips.co.uk/healthcare/product/HC1078226/bipap-a40-bi-level-ventilatorPredstavništva u Srbiji email adresa: vitomir.komarcevic@galen-fokus.co.rs
- [MAŠINE ZA NEINVAZIVNU VENTILACIJU(NIV) - Vivo 3 je novi VIVO 40](https://als.dgt.rs/2020/05/09/vivo-3-je-novi-vivo-40/) - breas.com/products/vivo-3/ breas.com/products/vivo-55/ Predstavništvo u Srbiji, e–mail adrese: ljiljana.vilovski@bormiamed.com
- [MAŠINE ZA NEINVAZIVNU VENTILACIJU(NIV) - Mašine za potpomognuto iskašljavanje – mašine za kašalj](https://als.dgt.rs/2020/05/09/masine-za-potpomognuto-iskasljavanje-masine-za-kasalj/) - www.philips.co.in/healthcare/product/HC1098159/coughassist-e70-mechanical-insufflator-exsufflator Predstavništva u Srbiji, e–mail adrese: vitomir.komarcevic@galen-fokus.co.rs
- [Epidemija virusom COVID 19,  Maj 2020](https://als.dgt.rs/2020/05/25/epidemija-virusom-covid-19-maj-2020/) - Važne napomene : Poštovani pacijenti sa bolešću motoneurona i članovi porodica obolelihBorba sa virusom COVID 19 još uvek traje i obolelii od amiotrofične lateralne skleroze kao i ostalih oblika bolesti motoneurona još uvek su u grupi izuzetno rizičnih bolesnika . Potrebno je da se i dalje pridržavate predloženih mera zaštite od infekcije ovim virusom:• Često pranje ruku
- [UPCOMING WEBINARS](https://als.dgt.rs/2020/05/25/upcoming-webinars/)
- [Važne infromacije vezane za Korona virus](https://als.dgt.rs/2020/05/17/vazne-infromacije-vezane-za-korona-virus/) - Šta je korona virus?Korona virusi su velika porodica virusa koji mogu izazvati bolest kod životinja ili ljudi. Kod ljudi je poznato da nekoliko korona virusa uzrokuje respiratorne infekcije, u rasponu od obične prehlade do najtežih formi zapaljenja pluća koje dovode otkazivanja pluća.Svetska zdravstvena organizacija je 11. marta 2020., proglasila pandemiju novog korona virusa koji se
- [Profesorka Keti Mičel - Pomoć u edukaciji medicinskih sestara KCS 2006-2011.](https://als.dgt.rs/2020/05/15/profesor-kathy-mitchell-pomoc-u-edukaciji-medicinskih-sestara-kcs-2006-2011/) - Profesorka Keti Mičel (Kathy Mitchell) Profesorka Keti Mičel, medicinska sestra sa Algonquin koledža - Otawa iz Kanade, pružila je nesebičnu pomoć u edukaciji medicinskih sestara Klinike za neurologiju KCS u procesu nege i podrške ALS pacijenata. Keti je takođe, uz podršku Internacionalnog udruženja za bolesti motoneurona i Kanadske ambasade u Beogradu uspela da nabavi različite
- [Dabitz Rian​ ALS  pacijent iz Španije  gost Klinike za neurologiju KCS i Udruženja za bolesti motoneurona - 25. 10 2019.](https://als.dgt.rs/2020/05/17/dabitz-rian​-als-pacijent-iz-spanije-gost-klinike-za-neurologiju-kcs-i-udruzenja-za-bolesti-motoneurona-25-10-2019/) - Projekat “7 logos 7 vidas” Gospodin Dabitz Rain iz Šanije , profesor ekologije Univerziteta u Madridu koji boluje od ALS bio je naš gost u sklopu projekta pod nazivom “7 jezera 7 života”, koji je podržalo je Španska Asocijacija ALS pacijenata- ADELA i Španska vlada. Film se može naći na sledećoj web adresi: www.7lagos7vidas.com a
- [Pravilnik o medicinsko-tehničkim pomagalima koja se obezbeđuju iz sredstava obaveznog zdravstvenog osiguranja](https://als.dgt.rs/2020/05/17/pravilnik-o-medicinsko-tehnickim-pomagalima-koja-se-obezbed-iz-sredstava-obaveznog-zdravstvenog-osiguranja/) - Pravilnik o medicinsko-tehničkim pomagalima koja se obezbeđ iz sredstava obaveznog zdravstvenog osiguranja Ovu prezentaciju možete preuzeti na ovom linku
- [Aukcija dresova NBA Pistons-a](https://als.dgt.rs/2020/05/12/aukcija-dresova-nba-pistons-a-u-detroitu-pod-pokroviteljstvom-gospodina-igora-kokoskova-2006-godine-donacija-drustvu-za-bolesti-motoneurona/) - U Detroitu pod pokroviteljstvom gospodina Igora Kokoškova 2006. godine održala se aukcija dresova Detroit Pistons-a kao donacija Društvu za bolesti motoneurona.
- [ALS pacijenti 2005. i 2006. godine na Klinici za neurologiju KCS Beograd](https://als.dgt.rs/2020/05/14/als-pacijenti-2005-i-2006-godine-na-klinici-za-neurologiju-kcs-beograd/)
- [Fotografije sa seminara 29.01.2010.](https://als.dgt.rs/2020/05/15/fotografije-sa-seminara-29-01-2010/)
- [Maske za lice neophodne za korišćenje NIV mašina](https://als.dgt.rs/2020/05/09/maske-za-lice-neophodne-za-koriscenje-niv-masina/) - www.philips.com/healthcare Predstavništva u Srbiji email adrese: vitomir.komarcevic@galen-fokus.co.rs ljiljana.vilovski@bormiamed.com
- [Nacionalna organizacija za retke bolesti - NORBS](https://als.dgt.rs/2020/05/09/456/) - www.norbs.rs
- [Tobii- Asistivna tehnologija (AtTech)](https://als.dgt.rs/2020/05/09/tobii-asistivna-tehnologija-attech/) - www.at-tech.rs Specijalni kompjuterski komunikacioni sistem-kompjuteri kojima se može upravljati pogledom.

## Pages

- [Home](https://als.dgt.rs/) - Najvažnije je da ne odustajete i borite se Na humanitarno-memorijalnom turniru “LAZAR BJELAJAC” 22.juna 2025. godine ostvarena je donacija za Udruženje za bolesti motoneurona Srbije radi nabavke pomoćnog komunikacionog kompjuterskog uređaja poznatijeg kao TobiiEye Tracker. Organizatori pozivaju sve odgovorne kompanije i ljude sa velikim srcem da se uključe u akciju, te da prisustvuju i učestvuju na
- [Terapija](https://als.dgt.rs/terapija/) - Terapija Postavite pitanje Prof. dr Zorici Stević Ime i prezime Kontkat Pitanje Pošaljite pitanje EDARAVON (XAVRON®) Do 2017. godine jedini lek koji je bio prihvaćen za lečenje ALS bio je riluzol (Rilutek®), koji je od FDA registrovan 1995. godine. Riluzol pripada grupi benzotiazola i njegov efekat na ćelije motornih neurona se zasniva na tome da
- [Aktivnosti udruženja](https://als.dgt.rs/aktivnosti-udruzenja/) - Vesti i aktivnosti Uz velike napore, od samog osnivanja, Udruženje je dobijalo manje, pre svega, inostrane donacije od Kanadske ambasade, Internacionalne asocijacije za pomoć obolelima od ALS i drugih bolesti motoneurona. Izuzetan doprinos u unapređenju rada sa ALS bolesnicima pružila je gospođa Keti Mičel (Kathy Mitchell), viša medicinska sestra iz Kanade koja je više puta
- [Udruženje za bolesti motoneurona Srbije](https://als.dgt.rs/udruzenje-za-bolesti-motoneurona-srbije/) - Udruženje za bolesti motoneurona Srbije​ Društvo za bolesti motoneurona Jugoslavije osnovali su lekari Klinike za neurologiju Kliničkog centra Srbije u Beogradu, sa Odeljenja za neuromišićne bolesti 1997. godine. Prvi predsednik Društva bio je gospodin Jovan Babić. Udruženje je član Nacionalne organizacije za retke bolesti (NORBS) od 2014. godine. Od 2016. godine izvršena je preregistracija i
- [In memoriam](https://als.dgt.rs/in-memoriam/) - In memoriam In memoriam je deo našeg sajta koji je posvećen svim ALS bolesnicima koji su izgubili bitku sa ovom bolešću. Svi mi dobro znamo da su oni bili divni ljudi, izuzetno posvećeni svojim porodicama, poslu koju su obavljali, omiljeni među prijateljima. Pozivamo članove porodica da pošalju fotografije i da uz to prilože kratak tekst
- [My account](https://als.dgt.rs/my-account/) - [woocommerce_my_account]
- [Checkout](https://als.dgt.rs/checkout/) - [woocommerce_checkout]
- [Shop](https://als.dgt.rs/shop/)
- [Cart](https://als.dgt.rs/cart/) - [woocommerce_cart]
- [Šta je ALS?](https://als.dgt.rs/sta-je-als/) - Kakva je to bolest amiotrofična lateralna skleroza? Amiotrofična lateralna skleroza (ALS) je retka neurološka bolest koja nastaje zbog oštećenja i gubitka nervnih ćelija tzv. motornih neurona u mozgu i kičmenoj moždini, što dovodi do poremećaja odašiljanja impulsa preko perifernih živaca u mišiće. Osnovne karaktersitike ALS su razvoj slabosti i gubitak mišićne mase, najčešće ruku i

## My Templates

- [Default Kit](https://als.dgt.rs/?elementor_library=default-kit)
- [als-post](https://als.dgt.rs/?elementor_library=als-post) - als-post
- [PDF Pravilnik](https://als.dgt.rs/?elementor_library=pdf-pravilnik) - Ovu prezentaciju možete preuzeti na ovom linku
- [PDF Prezentacija](https://als.dgt.rs/?elementor_library=pdf-prezentacija) - Ovu prezentaciju možete preuzeti na ovom linku
- [PDF Vodič za ishranu](https://als.dgt.rs/?elementor_library=pdf-vodic-za-ishranu) - Ovu brošuru možete preuzeti na ovom linku
- [PDF Vodič za svakodnevni život](https://als.dgt.rs/?elementor_library=pdf-vodic-za-svakodnevni-zivot) - Ovu brošuru možete preuzeti na linku
- [PDF-Vodič za disanje](https://als.dgt.rs/?elementor_library=pdf-vodic-za-disanje) - Ovu brošuru možete preuzeti na linku

## Categories

- [Uncategorized](https://als.dgt.rs/category/uncategorized/)
- [Linkovi](https://als.dgt.rs/category/linkovi/)
- [Vesti i aktivnosti](https://als.dgt.rs/category/vesti-i-aktivnosti/)
- [Aktuelno](https://als.dgt.rs/category/aktuelno/)